National registry on Pulmonary Fibrosis
The Italian Federation of Pulmonary Fibrosis and Rare Pulmonary Diseases (FIMARP) brings together associations that deal with rare lung diseases to raise awareness among the scientific community and to support patients by creating specific support pathways.
To mark World Lung Day the Italian Higher Institute of Public Health is working with FIMARP on a National Registry for Pulmonary Fibrosis. National disease registers like this one are indispensable tools to gauge prevalence, distribution, demographics and clinical statistics.
Also on 25 September, the first FIMARP National Convention will be held in Rome.
More: https://www.fimarp.it/
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